Welcome to the North West Perinatal/Neonatal Palliative Care page
Over 8000 babies are cared for at across the NWNODN every year. Sadly some of these babies will die either in hospital or be discharged with a life-limiting illness to community settings where they can best be supported with palliative and end of life care. It is crucial that these babies receive holistic end of life and palliative care whilst their families and carers are supported through a very difficult and challenging time.
The following documents provide a framework and set of tools to assist health care professionals with their care provision, trying to ensure the right conversations take place at the right time, in the right place and with the right people. This then should hopefully result in the very best care possible being provided.
Guide to using the resources:
There is an overarching North West Perinatal/Neonatal Palliative Care Guideline and two care plans for care within the hospital setting and care provided in a hospice or home. Additional supporting documents have been placed into subgroups to help guide the user quickly to the information they require.
The resources found within this page have been produced as a result of a wide, multi-disciplinary and cross-organisational collaboration. We hope these documents and the information they contain will be welcomed as helpful tools for anybody providing palliative and end of life care in a multitude of settings and places, but always with the baby and their family at the centre. Please send us your comments and feedback after using this page and resources to
NWNODN Perinatal/Neonatal Palliative Care Guideline and Care Plans:
Nonviable or Pre Viable Births Including Live Birth Following Termination of Pregnancy
NWNODN Antenatal Congenital Anomoly discussion form MDT
Parent Information Leaflets
Friends and Family
Arranging the funeral
CDOP referral form
Diagnosing Brain Stem Death
Taking baby home
Additional Resources for Health Professionals
Additional Resources for Families
Hospices within the North West