Did you know that, as a parent or carer, you can get involved in improving how neonatal care is delivered across the north west region?  Through sharing your experience, you can help to influence how services are developed as well as supporting other parents and families using neonatal services.

There are a number of ways in which you can get involved:

Parent Advisory Groups (PAGs): There are three PAGs across the NWNODN each representing one of the three networks: Cheshire & Merseyside, Greater Manchester and Lancashire and South Cumbria. Each PAG is made up of parents and carers who have used neonatal services in the past. The role of a parent/carer representative is to represent the views and experiences of parents and families whose babies have been cared for in a neonatal unit.  Parent/carer representatives play a vital role in driving forward improvements and changes in neonatal care as well as ensuring parent voices are heard locally.

For more information or to become a member PAG for your region please contact the NWNODN team on or call the office on 0151 293 3578.

Being a PAG Member: A Parent’s Perspective

I have been a member of GM PAG for a year now and I just wanted to give you a bit of feedback on my journey so far. I knew whilst I was still in NICU that when I left I wanted to use my experience to help others. I didn’t know exactly what that would entail until the PAG was recommended to me.

I have felt so welcome ever since the first day. I feel that as parents we are really listened to and our opinions are valued and supported…

…I really feel like a valued member of not just the PAG, but the ODN. I have loved attending meetings, study days etc. and it is really great to see that what we do makes a difference. It means everything that we have been through has a greater purpose.

Thank you for all the help and support you have given me so far. I really appreciate it!

Lisa (Former member of GM PAG & Current member of LSC PAG)

Local Parent Support Groups: many neonatal units have parent groups who offer support and advice to other parents. For more information about your neonatal units’ parent group ask a member of the nursing team for more information or visit the Peer Support page on this website.

Through the NWNODN: please send us feedback of your experiences of neonatal care within the NWNODN including any suggestions for areas of improvement. We are keen to celebrate and share examples of outstanding practice, as well as work towards improving services and care when expectations are not met. Please contact us by emailing:

Please click here to access the Parent Advisory Group Terms of Reference

 

The Annual PAG Teddy Bears’ Picnic (August 2019)

To say a huge thank you for all the dedication and support the families involved in the NWNODN PAG give to helping develop services and improve care for families across the north west a Teddy Bears Picnic was held to all come together and have fun!!

Many of the children who attended have been cared for in neonatal units across the network and it was a great opportunity to catch up and and have lots of fun with siblings, grandparents, mums and dads! There was face paining, crafts, making an Oli Elephants out of milk cartons, lots of running around and of course a yummy picnic with everyone’s favourite Teddy bear!!